Senate Passes ALS Registry Act
Today, the ALS community celebrated the Senate's passage of S. 1382, the ALS Registry Act, with very positive ramifications for people with amyotrophic lateral sclerosis (ALS, or Lou Gehrig's disease). The House of Representatives passed similar legislation in 2007.Jerry Lewis Thanks MD Community as Legislation Passes House
Legendary entertainer and MDA National Chairman Jerry Lewis today expressed gratitude to all those working to pass the Muscular Dystrophy Community Assistance, Research and Education (MD-CARE) Amendments of 2008.Artwork by Herndon Artist Accepted into MDA Art Collection
TUCSON, Ariz., Sept. 25, 2008 – A watercolor painting by Matthew B. Grenier of Herndon, Va., has been accepted by the Muscular Dystrophy Association's Art Collection. Now in its 16th year, the Collection features artwork by people from across the country with muscular dystrophy and related diseases.Updated MD-CARE Act Receives Final Congressional Approval
The Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education (MD-CARE) Amendments of 2008 received final Congressional approval today. It now goes to President Bush, who is expected to sign it.MDA Joins Walgreens to Offer Flu Shots to People the Association Serves
Continuing a service it has provided for decades, the Muscular Dystrophy Association (MDA) again is offering flu shots to people who have any of the more than 40 diseases it covers. To assist individuals in obtaining vaccinations this flu season, the Association teamed up with Walgreens to offer shots at thousands of Walgreens locations across the country through a voucher program.California Girl Returns in 2009 as MDA National Goodwill Ambassador
Abbey Umali, a vivacious 9-year-old from Redlands, Calif., will return for a second term as the Muscular Dystrophy Association’s National Goodwill Ambassador in 2009.New Oakley Special Edition Sunglasses Support MDA ALS Initiative
Oakley has teamed up with the Muscular Dystrophy Association to offer two special edition HIJINX sunglasses to support MDA's aggressive, cure-driven ALS research initiative, Augie's Quest.VA Confirms ALS Disability Benefits for Vets
As reported on this site in July, the Veterans Administration was planning to broaden its compensation for all ALS-affected vets. That information was issued by both Sen. Lindsey Graham and Rep. Henry Brown.Artwork by Hemet Artist Accepted into MDA Art Collection
TUCSON, Ariz., September 5, 2008 – A photograph by Howard Feigenbaum of Hemet, Calif., has been accepted as the 350th piece in the Muscular Dystrophy Association’s Art Collection. Now in its 16th year, the Collection features artwork by people from across the country with muscular dystrophy and related diseases.Artwork by Dacula Artist Accepted into MDA Art Collection
TUCSON, Ariz., September 5, 2008 – An oil painting by Conor Roberts of Dacula, Ga., has been accepted by the Muscular Dystrophy Association’s Art Collection. Now in its 16th year, the Collection features artwork by people from across the country with muscular dystrophy and related diseases.-
Telethon
The Telethon is the single most important fundraising event of the year for MDA. Funds raised help the Association carry on its fight against more than 40 neuromuscular diseases, including a worldwide program of basic and applied research, a nationwide network of comprehensive medical and support services, and extensive professional and public education. Children and adults with neuromuscular diseases benefit directly from dollars raised during the Telethon.
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Research
MDA is the world's largest non-governmental sponsor of research seeking the causes of and effective treatments for neuromuscular diseases, sponsoring some 400 research projects annually.
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MDA Worldwide
MDA has long had a worldwide impact. Since 1951, MDA has funneled almost $50 million to researchers in 36 countries on six continents. And many times that amount has been awarded in MDA research grants in the United States.