About Us
The Muscular Dystrophy Association (MDA) is a voluntary health agency striving to find the cures, causes, and treatments for 43 different neuromuscular diseases. The Association’s programs are funded almost entirely by individual private contributors. MDA seeks no government grants, United Way funding or fees from those it serves.
Funds raised for MDA will stay in Alaska to help fund services such as clinic visits, medical examinations, flu shots, assistance with the purchase of wheelchairs and leg braces, a week long summer camp for children aged 6-17, and support groups for MDA clients and families.
MDA supports more research on neuromuscular diseases than any other private-sector organization in the world. MDA scientists are in the forefront of gene therapy research and have uncovered the genetic defects responsible for several forms of muscular dystrophy, Charcot-Marie-Tooth disease, a form of amyotrophic lateral sclerosis (ALS, or Lou Gehrig’s disease), childhood spinal muscular atrophy, and several other neuromuscular conditions.
You can contact MDA Alaska at 907-276-2131 or use our handy contact form. To find out more about MDA and their activities visit http://www.mda.org
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Telethon
The Telethon is the single most important fundraising event of the year for MDA. Funds raised help the Association carry on its fight against more than 40 neuromuscular diseases, including a worldwide program of basic and applied research, a nationwide network of comprehensive medical and support services, and extensive professional and public education. Children and adults with neuromuscular diseases benefit directly from dollars raised during the Telethon.
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Research
MDA is the world's largest non-governmental sponsor of research seeking the causes of and effective treatments for neuromuscular diseases, sponsoring some 400 research projects annually.
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MDA Worldwide
MDA has long had a worldwide impact. Since 1951, MDA has funneled almost $50 million to researchers in 36 countries on six continents. And many times that amount has been awarded in MDA research grants in the United States.