Today is: Friday, September 3rd, 2010

Helping Jerry's Kids.

UPDATE: Air Travelers ‘Hostile’ as DOT, Vent Manufacturers Take Their Time Creating Required Labels

Air travelers ‘hostile’ as DOT, vent manufacturers take their time creating required labels

July 31, 2009 | Filed Under MDA News | Comments Off 

CNM, MTM Research: Conference Planned for Families

Families affected by centronuclear myopathies will Webcast their conference in Houston July 24-26.

July 10, 2009 | Filed Under MDA News | Comments Off 

ALS Research: No Single PON Gene Variant Raises Risk of ALS

An analysis shows no single PON gene variant increases ALS risk, but doesn't rule out ALS-PON connections.

July 10, 2009 | Filed Under MDA News | Comments Off 

11th Annual MDA Live Ride

It is with heartfelt appreciation that the families of MDA in Alaska thank you for raising more than $46,000 in 2008. We could not continue to strive for a cure for muscular dystrophy without the loyal support of our Alaskan biker friends. MDA is again asking your support in the continuing fight against neuromuscular disease.

Live Ride ParadeLive Ride for MDA is getting a face lift…We have a new ending destination…Kenai Landing! As always we will start at the Anchorage City Church and we’ll have stops along the way. For those of you in the Valley there is registration at Denali Harley-Davidson. Packets are on sale now, get yours today! Packets are available at House of Harley-Davidson and Buell in Spenard, Denali Harley-Davidson in the Valley, Kenai Peninsula Harley-Davidson in Soldotna and the Muscular Dystrophy Association office at 121 West Fireweed Lane. If you have any questions please call us at 276-2131 or 1-800-478-5683.

On Saturday, July 18, 2009 we will be conducting the 11th Annual Live Ride for MDA. All types and brands of motorcycles and motorcyclists are welcome to come and have a good time.

We ride from the Anchorage City Church and our destination is Kenai Landing.

The Live Ride for MDA typically makes stops for gas/comfort at Girdwood, Sunrise Inn, and Cooks Corner in Sterling. Come alone or in groups. Check with your local riding organization as they may already be planning to ride with us!

For more information, visit http://www.mdaliveride.com.

May 26, 2009 | Filed Under Events | Leave a Comment 

15th Annual Tesoro Golf Tournament

Fore! 

It’s time for the 15th Annual Tesoro Golf Tournament.  This event is a fun filled day that includes golf, a silent auction, lunch and good times.  This year we are so pleased to be having the tournament at the Anchorage Golf Course/O’Malley’s on the Green, our Paradise in Alaska.  Aloha, that’s right we’re putting a little Hawaiian theme to the event.  The tournament will begin with a 7:00 am shotgun start and end with a Hawaiian Luau Buffet.  There will be prizes to give away and a silent auction occurring during lunch.  Mark your calendar for Friday July 31st.  Contact the MDA office at 276-2131 for details on how to sign up for this memorable event.  All monies raised will go directly to the Alaska Chapter of the Muscular Dystrophy Association.  Your donation will help fund an array of services, which include specialized medical care at the Alaska Regional Hospital clinic, provision of wheelchairs and leg braces, support groups, summer camp and worldwide research in to the causes, treatments and cures for over 40 muscle wasting diseases.  The Alaska Chapter of the MDA provides services to over 300 families around the state.

May 14, 2009 | Filed Under Events | Leave a Comment 

  • Telethon

    The Telethon is the single most important fund raising event of the year for MDA. In 2009, $403,267 was raised statewide Alaska during the two day broadcast carried on KTUU, Channel 2 in Anchorage and KTVF, Channel 11 in Fairbanks. Funds raised help the Association carry on its fight against over 40 neuro-muscular diseases, including a worldwide program of basic and applied research, a nationwide network of comprehensive medical and support services, and extensive professional and public education. Children and adults with neuro-muscular diseases benefit directly from dollars raised during the Telethon.

  • Research

    MDA is the world's largest non-governmental sponsor of research seeking the causes of and effective treatments for neuro-muscular diseases, sponsoring some 400 research projects annually.

  • MDA Worldwide

    MDA has long had a worldwide impact. Since 1951, MDA has funneled almost $50 million to researchers in 36 countries on six continents. And many times that amount has been awarded in MDA research grants in the United States.