Event Calendar
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South Carolina Teen to Assume New National MDA Spokesperson Role
Popular MDA spokesperson Luke Christie will take on a different ambassadorial role for the Muscular Dystrophy Association in the coming year.Billy Gilman to Assume New MDA Spokesperson Role
Popular MDA spokesperson and award-winning country music artist Billy Gilman will take on a different ambassadorial role for the Muscular Dystrophy Association in the coming year.Senate Passes ALS Registry Act
Today, the ALS community celebrated the Senate's passage of S. 1382, the ALS Registry Act, with very positive ramifications for people with amyotrophic lateral sclerosis (ALS, or Lou Gehrig's disease). The House of Representatives passed similar legislation in 2007.Jerry Lewis Thanks MD Community as Legislation Passes House
Legendary entertainer and MDA National Chairman Jerry Lewis today expressed gratitude to all those working to pass the Muscular Dystrophy Community Assistance, Research and Education (MD-CARE) Amendments of 2008.Artwork by Herndon Artist Accepted into MDA Art Collection
TUCSON, Ariz., Sept. 25, 2008 – A watercolor painting by Matthew B. Grenier of Herndon, Va., has been accepted by the Muscular Dystrophy Association's Art Collection. Now in its 16th year, the Collection features artwork by people from across the country with muscular dystrophy and related diseases.Updated MD-CARE Act Receives Final Congressional Approval
The Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education (MD-CARE) Amendments of 2008 received final Congressional approval today. It now goes to President Bush, who is expected to sign it.MDA Joins Walgreens to Offer Flu Shots to People the Association Serves
Continuing a service it has provided for decades, the Muscular Dystrophy Association (MDA) again is offering flu shots to people who have any of the more than 40 diseases it covers. To assist individuals in obtaining vaccinations this flu season, the Association teamed up with Walgreens to offer shots at thousands of Walgreens locations across the country through a voucher program.California Girl Returns in 2009 as MDA National Goodwill Ambassador
Abbey Umali, a vivacious 9-year-old from Redlands, Calif., will return for a second term as the Muscular Dystrophy Association’s National Goodwill Ambassador in 2009.New Oakley Special Edition Sunglasses Support MDA ALS Initiative
Oakley has teamed up with the Muscular Dystrophy Association to offer two special edition HIJINX sunglasses to support MDA's aggressive, cure-driven ALS research initiative, Augie's Quest.VA Confirms ALS Disability Benefits for Vets
As reported on this site in July, the Veterans Administration was planning to broaden its compensation for all ALS-affected vets. That information was issued by both Sen. Lindsey Graham and Rep. Henry Brown.Telethon
The Telethon is the single most important fund raising event of the year for MDA. In 2009, $403,267 was raised statewide Alaska during the two day broadcast carried on KTUU, Channel 2 in Anchorage and KTVF, Channel 11 in Fairbanks. Funds raised help the Association carry on its fight against over 40 neuro-muscular diseases, including a worldwide program of basic and applied research, a nationwide network of comprehensive medical and support services, and extensive professional and public education. Children and adults with neuro-muscular diseases benefit directly from dollars raised during the Telethon.