California Girl Named 2008 MDA National Goodwill Ambassador
The Muscular Dystrophy Association’s 2008 National Goodwill Ambassador is Abbey Umali of Redlands, Calif., a lively and articulate 8-year-old with a form of Charcot-Marie-Tooth disease.Artwork By Cross Roads Artist Accepted Into MDA Art Collection
An oil-and-pastel painting by Margaret Ann Moran Drummond of Cross Roads, Texas (near Athens), has been accepted into the Muscular Dystrophy Association's Art Collection.Congress Overrides Medicare Veto
Continuing good news for people with muscular dystrophy and related diseases who also are enrolled in Medicare: Both houses of Congress yesterday fielded sufficient votes to override President Bush's veto of the Medicare Improvement for Patients and Providers Act of 2008.Good News from Capitol Hill for People with Progressive Muscle Diseases Who Use Medicar
On July 9, the Senate handily passed the Medicare Improvement for Patients and Providers Act. (The Act already had been passed by a large majority in the House.) In addition to quashing a proposed reimbursement cut for doctors who treat Medicare patients, the Act delays implementation of the controversial national competitive bidding program, designed by CMS (Centers for Medicare and Medicaid Services) to go into effect this summer.Tesoro Golf Tournament
This is a golf tournament sponsored by Tesoro. It takes place at Settler’s Bay in Wasilla.
Live Ride for MDA
Our annual motorcycle ride from Anchorage to Soldotna. Check out more at http://www.mdaliveride.com.
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Telethon
The Telethon is the single most important fundraising event of the year for MDA. Funds raised help the Association carry on its fight against more than 40 neuromuscular diseases, including a worldwide program of basic and applied research, a nationwide network of comprehensive medical and support services, and extensive professional and public education. Children and adults with neuromuscular diseases benefit directly from dollars raised during the Telethon.
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Research
MDA is the world's largest non-governmental sponsor of research seeking the causes of and effective treatments for neuromuscular diseases, sponsoring some 400 research projects annually.
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MDA Worldwide
MDA has long had a worldwide impact. Since 1951, MDA has funneled almost $50 million to researchers in 36 countries on six continents. And many times that amount has been awarded in MDA research grants in the United States.